Learn more about the causes close to Mykeah’s heart. Find educational resources, action items and ways to donate in the links below...
National Down Syndrome Society
Website: https://www.ndss.org/
Mission
The National Down Syndrome Society is the leading human rights organization for all individuals with Down syndrome.
Vision
The National Down Syndrome Society envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations and become valued members of welcoming communities.
Mission
The National Down Syndrome Society is the leading human rights organization for all individuals with Down syndrome.
Vision
The National Down Syndrome Society envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations and become valued members of welcoming communities.
Manny's Super Fight
Manny is our funny, Toy Story 4, superhero crazed, boy who, in 2019 at 13 years of age, was diagnosed with a brain tumor, a canceous glioma. According to https://dana.org/article/gliomas-the-latest-research/ "In spite of these advances, malignant gliomas still are dangerous tumors and most patients will not survive them beyond a few years. Benign gliomas slowly grow, producing disabilities, and eventually are also fatal. Surgery might extend survival 9 or 10 months". His uncle died I believe in his early 20's from complications from the same condition. Manny's condition has gotten more critical as we are going through chemotherapy that started on October 19th, 2019. With back and forth trips to the hospital we have taken a toll as a family. He was diagnosed with neurofibromatosis before coming into our care but due to medical neglect, it wasn't treated in a timely manner resulting in more major health problems. Such as Dyshagia, Epigastric Pain, myopia, anisometropia, acute anterior uveitis, mild scoliosis, mild varus left leg and LLD, Advance bone age, pain in both legs, heart murmur, lisch nodules, band keratopathy, and more that he is being followed for......